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2-Year-Old Born With Rare Disorder Is Visited By Man With Same Condition

Jono Lancaster suffers from Treacher Collins syndrome, but has become incredibly influential for educating and inspiring others who are also affected by the rare genetic disorder. While on his nationwide tour, Lancaster spent three days with a 2-year-old who considers him to be a real-life hero.  

Treacher Collins syndrome, which occurs in about one in 50,000 births in Europe, prevents craniofacial features from developing properly. While it took over two decades for Lancaster to come to terms with his genetic disorder, he now uses it to inspire others who are affected by it.


2-year-old Zackary Walton, who also has Treacher Collins syndrome, idolizes Lancaster, which prompted his mother to contact him to see if he would visit her son. “Jono is a very important person to our family,” Mrs. Walton told The Daily Mail. “Not only is he a huge celebrity and a hero to us but to have the same condition as our son and to have such a positive attitude is very inspiring.”

Jono was thrilled to have the opportunity to meet Zackary and spent three days with him and his family in Mannum, Australia. “I would have loved to have met somebody like myself when I was younger,” Lancaster told Adelaide Now. “Somebody who had got a job, got a partner and said to me ‘these are the things you can do, you can achieve.’”

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