Neurofibromatosis is a genetic disorder which causes tumors to form on the nerve tissues all over the body. They can form in your brain and spinal cord and it is usually diagnosed during childhood or young adulthood. Unfortunately, this disorder cannot be cured; but there are treatments that can help someone recover from it. With that said; there is a story about a woman with 6000 tumors that has made a remarkable recovery.
Someone that is suffering from type 2 neurofibromatosis will have tumors on their brain and spinal cord. Because of this, the life expectancy of someone suffering from type 2 neurofibromatosis is 65-years-old. If you are suffering from type 2 neurofibromatosis, you will experience ringing in the ears, trouble with balance, impaired vision, and seizures.
For the full story about the woman with 6000 tumors who has made a remarkable recovery, please continue reading.
For over 25 years, Libby Huffer was suffering from neurofibromatosis. During her teenage years, Huffer only had a few hundred tumors over her body. That may seem like a lot, but once she became pregnant with her daughter Lindsey, the change in her hormones caused the bumps to multiply into the thousands.
The tumors are not fatal, but what they do is make day-to-day appearances very difficult. Huffer explains that the tumors on her back cause chronic pain and the nerves on her feet constantly have a tingling sensation. All of these issues made it difficult for her to sleep.
After Huffer endured neurofibromatosis for more than two decades, she made an appearance on the television show “The Doctors.” This show has doctors give medical advice to people who are dealing with embarrassing conditions. Once Huffer shared her story, she was offered an opportunity to try electrodesiccation surgery.
This treatment kills the neurofibromatosis bumps and eliminates all the tissue that is causing the growth. Huffer instantly said yes to the treatment. In June 2017, she underwent the operation to remove 1000 of those tumors from her face and neck. In order to reduce the scaring, she also underwent CO2 laser surgery.
Despite the healing process being slow, Huffer said that she saw a dramatic improvement immediately. Huffer says that she is extremely happy and hopes that she can one day have the rest of them removed as well.
This condition is incredibly rare. It only affects 0.04 of the world’s population. Huffer’s case was even rarer. But thanks to the treatment, she can get back to living a regular life. She can now avoid the stares and crude comments she used to get. She also plans to continue raising awareness about this rare disease. Below is a picture of how Huffer looks now.
Despite the physical recovery going well, Huffer explains that there is still a long way to go to recovering emotionally. But she does say that the more surgeries she has, the more confident she will become. She hopes that one day all those painful memories she experienced as a child will be erased.
The beautiful thing about the world is that it is full of diversity. This doesn’t just mean culture and religion, it means how people look. But what makes it beautiful is the inside of each and every one of us. You can never judge a book by its cover, and you should always try and put yourself in the position of that person before you judge them or say something you’ll regret.